Get Involved
Volunteer Your Skills
We are a volunteer-driven organization. Whether you're a scientist, marketer, translator, or simply passionate — there's a place for you.
Ways to Help
Your skills can change lives.
🔬 Scientific Strategy
Provide strategy advice on therapeutic approaches, or scientific guidance on DNM1 variants and research directions.
🌎 Translation & Outreach
Help us reach families in Japan, China, LATAM, and beyond. Fluency in any language is incredibly valuable for finding undiagnosed patients.
📣 Marketing & Communications
Help craft awareness campaigns, manage social media, write content, or support our fundraising efforts.
💼 Administration & Operations
Support the day-to-day running of our organization — project coordination, grant writing, event planning, and more.
Apply Now
Join the movement.
Fill out the form below and describe your skills. We'll be in touch about current volunteer opportunities.